Anest. intenziv. Med. 2022;33(3-4):141-147 | DOI: 10.36290/aim.2022.028
Evaluation of the Utility of the Advance Care Planning and Decision‑Making Supportive ToolOriginal Article
- 1 Ústav lékařské etiky, Lékařská fakulta Masarykovy univerzity v Brně
- 2 Ústav psychologie a psychosomatiky, Lékařská fakulta Masarykovy univerzity v Brně
- 3 Klinika paliativní medicíny 1. LF UK a VFN v Praze
Objectives: To evaluate the effectiveness of ARS - a newly developed instrument designed for advance care planning for patients with advanced serious illness - in clinical settings, to examine potential differences in perceived effectiveness of ARS between experts and practitioners, and to determine areas in which ARS is perceived as most useful.
Design: Survey; descriptive and correlational study. Setting: Departments of anaesthesiology, resuscitation, intensive medicine, neurology, infectious diseases, and internal medicine, at university and district hospitals.
Material and methods: Ten experts with extensive experience in the field and 20 practitioners instructed to use ARS in their everyday practice rated the usefulness of ARS on several criteria. Data were analysed using descriptive statistics, principal component analysis, correlation analyses, and t-tests.
Results: Both groups generally perceived ARS as undemanding and easy to understand. However, compared to practitioners, experts were much more unanimous in rating ARS highly in the composite criteria of Lower Cognitive Load and Communication Facilitation (Cohen's d = 1.70 and 1.14; p < 0.01). Years of clinical experience were negatively, albeit non-significantly, related to Lower Cognitive Load ratings in practitioners (Spearman's ρ = -0.37, p = 0.13). Ratings of this criterion were generally higher at hospital departments without any previously implemented procedures for advance care planning and decision-making (d = 1.86, p < 0.001).
Conclusion: Both experts and practitioners generally rated ARS as easy to follow, undemanding, and potentially useful. Implementation of the instrument in practice might increase the quality of medical care for patients with advanced serious illness.
Keywords: advance care planning, clinical decision making, communication, end of life, patient preference.
Received: May 26, 2022; Revised: September 5, 2022; Accepted: September 13, 2022; Published: October 27, 2022 Show citation
ACS | AIP | APA | ASA | Harvard | Chicago | Chicago Notes | IEEE | ISO690 | MLA | NLM | Turabian | Vancouver |
References
- Kuře J. (ed.). Rozhodování o zdravotní péči v závěru života. Praha: Academia; 2022.
- Sláma O. Několik poznámek k hledání "dobrého umírání" v medicíně pozdně moderní doby. In: Kuře J, Petrů M a kol. Filosofie medicíny v českých zemích. Praha: Triton; 2015. p. 253-276.
- Fahner JC, Beunders AJM, van der Heide A, Rietjens JAC, Vanderschuren MM, van Delden JJM, et al. Interventions guiding advance care planning conversations: A systematic review. J Am Med Dir Assoc. 2019 Mar;20(3):227-248.
Go to original source...
Go to PubMed...
- Hickman SE, Hammes BJ, Moss AH, Tolle SW. Hope for the future: achieving the original intent of advance directives. Hastings Cent Rep 2005; Spec No:S26e30.
Go to original source...
- Hall A, Rowland C, Grande G. How should end‑of‑life advance care planning discussions be implemented according to patients and informal carers? A qualitative review of reviews. J Pain Symptom Manage. 2019 Aug;58(2):311-335.
Go to original source...
Go to PubMed...
- Kuře J. Etika rozhodování o zdravotní péči v závěru života. Časopis zdravotnického práva a bioetiky. 2020;10(2): 84-104.
- Dvořáčková K, Slezáčková A, Čermáková L. Psychosociální faktory na straně lékaře ovlivňující proces péče a rozhodování v závěru života pacientů. Československá psychologie. 2021; 65(4): 369-388.
Go to original source...
- Maláska J, Stašek J, Kratochvíl M, Zvoníček V a kol. Intenzivní medicína v praxi. Praha: Maxdorf Medica; 2020.
- Slezáčková A, Dvořáčková K, Kopecký O, Rusinová K, Sláma O, Černý D, et al. Faktory ovlivňující proces rozhodování o péči v závěru života u hospitalizovaných pacientů. Cas Lek Cesk. 2021 Fall;160(5):176-184.
Go to PubMed...
- Walczak A, Butow PN, Bu S, Clayton JM. A systematic review of evidence for end‑of‑life communication interventions: who do they target, how are they structured and do they work? Patient Educ Couns 2016;99:3e16.
Go to original source...
Go to PubMed...
- Frechman E, Dietrich MS, Walden RL, Maxwell CA. Exploring the uptake of advance care planning in older adults: An integrative review. J Pain Symptom Manage. 2020 Dec;60(6):1208-1222.e59.
Go to original source...
Go to PubMed...
- Weathers E, O'Caoimh R, Cornally N, Fitzgerald C, Kearns T, Coffey A, et al. Advance care planning: A systematic review of randomised controlled trials conducted with older adults. Maturitas. 2016 Sep;91:101-9.
Go to original source...
Go to PubMed...
- Wendrich‑van Dael A, Bunn F, Lynch J, Pivodic L, Van den Block L, Goodman C. Advance care planning for people living with dementia: An umbrella review of effectiveness and experiences. Int J Nurs Stud. 2020 Jul;107:103576.
Go to original source...
Go to PubMed...
- Ashana DC, Chen X, Agiro A, Sridhar G, Nguyen A, Barron J, et al. Advance care planning claims and health care utilization among seriously ill patients near the end of life. JAMA Netw Open. 2019 Nov 1;2(11):e1914471.
Go to original source...
Go to PubMed...
- Khandelwal N, Kross EK, Engelberg RA, Coe NB, Long AC, Curtis JR. Estimating the effect of palliative care interventions and advance care planning on ICU utilization: a systematic review. Crit Care Med 2015;43:1102e1111.
Go to original source...
Go to PubMed...
- Martin RS, Hayes B, Gregorevic K, Lim WK. The effects of advance care planning interventions on nursing home residents: A systematic review. J Am Med Dir Assoc 2016;17(4):284-293.
Go to original source...
Go to PubMed...
- Wright AA, Zhang B, Ray A, Mack JW, Trice E, Balboni T, et al. Associations between end‑of‑life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA. 2008 Oct 8;300(14):1665-73.
Go to original source...
Go to PubMed...
- Carnevale FA. Moral distress in the ICU: it's time to do something about it! Minerva Anestesiol. 2020 Apr;86(4):455-460.
Go to original source...
Go to PubMed...
- Jimenez G, Tan WS, Virk AK, Low CK, Car J, Ho AHY. Overview of systematic reviews of advance care planning: Summary of evidence and global lessons. J Pain Symptom Manage. 2018 Sep;56(3):436-459.e25.
Go to original source...
Go to PubMed...
- Luchins AS. Mechanization in problem solving: The effect of Einstellung. Psychological Monographs. 1942;54(6)i-95.
Go to original source...
- Hirakawa Y, Saif‑Ur‑Rahman KM, Aita K, Nishikawa M, Arai H, Miura H. Implementation of advance care planning amid the COVID-19 crisis: A narrative review and synthesis. Geriatr Gerontol Int. 2021 Sep;21(9):779-787.
Go to original source...
Go to PubMed...
- Lekárová M, Barešová Z, Světlák M, Slezáčková A, Malatincová T, Šumec R. eHealth v medicíně a onkologii - nové horizonty klinické praxe. Klin Onkol. 2021 Fall;34(5):366-373.
Go to original source...
Go to PubMed...
- McDarby M, Llaneza D, George L, Kozlov E. Mobile applications for advance care planning: A comprehensive review of features, quality, content, and readability. Am J Hosp Palliat Care. 2021 Aug;38(8):983-994.
Go to original source...
Go to PubMed...
- van der Smissen D, Overbeek A, van Dulmen S, van Gemert‑Pijnen L, van der Heide A, Rietjens JA, et al. The Feasibility and effectiveness of web‑based advance care planning programs: Scoping review. J Med Internet Res. 2020 Mar 17;22(3):e15578.
Go to original source...
Go to PubMed...
- Miller H, Tan J, Clayton JM, Meller A, Hermiz O, Zwar N, Rhee J. Patient experiences of nurse‑facilitated advance care planning in a general practice setting: a qualitative study. BMC Palliat Care. 2019 Mar 6;18(1):25.
Go to original source...
Go to PubMed...